Who we are
WFH USA is the United States’ friendraising and fundraising arm of the World Federation of Hemophilia, affording American citizens, foundations and corporations the opportunity to help ensure treatment for all people with bleeding disorders, no matter where they live.
Founded in 1963, the World Federation of Hemophilia (WFH) is a unique network of people with bleeding disorders in 118 countries, their families, healthcare professionals and interested individuals and organizations. Together, we develop, test and promote healthcare programs that enable local patient populations to take care of themselves.
The WFH conducts training and capacity building at all levels, working with governments to improve healthcare delivery mechanisms and infrastructure, and fostering regional and international discourse on blood product safety. We tap global experiences and resources to develop sustainable solutions for healthcare issues.
Our international programs and activities include education for parents on hemophilia care; twinning of medical centers and hemophilia organizations in the developing world with counterparts in developed countries; news and information and dissemination; and training for doctors, nurses, and other healthcare professionals. We are proud to be a hub for a global community focused on ensuring treatment for all people with bleeding disorders.
Our mission:
To mobilize US support for the WFH's global mission to improve and sustain care for individuals with inherited bleeding disorders around the world.
WFH USA plays a vital role in this global mission by giving U.S. citizens, foundations and corporations the opportunity to support the work of the World Federation of Hemophilia and receive tax credits for their contributions. To find out how you can make a difference, visit
Get involved
WFH USA Board of Directors
President
Mark W. Skinner, J.D.
WFH President
Vice President
Craig M. Kessler, MD
Chief of the Division of Hematology, Georgetown University Medical Center
Executive Director and Secretary/Treasurer
Claudia Black
CEO/Executive Director, World Federation of Hemophilia
Members
Trish Dominic
CEO, Hemophilia of Georgia
Phil Kucab
Past Board Member, National Hemophilia Foundation
Shelly Mattson
Emeritus, National Youth Leadership
Institute, National Hemophilia Foundation
Shannon Penberthy
Associate Director, P&G Global Government Relations
Paula Bell
Communications/PR
William Sparrow
Executive Director, Cascade Hemophilia Consortium
Non-profit partners
Hemophilia of Georgia
Thanks to the staff and volunteers of Hemophilia of Georgia, blood-clotting treatment products are shipped to medical centers in more than 50 developing countries each year. Beyond providing WFH USA with invaluable assistance in international shipping, Hemophilia of Georgia also makes an outstanding leadership contribution. We are grateful for the advice and leadership of Trish Dominic, Executive Director, Hemophilia of Georgia, who serves on the WFH USA Board of Directors.
National Hemophilia Foundation
The National Hemophilia Foundation (NHF) serves people with hemophilia and other bleeding disorders throughout the United States. NHF has chapters across the country and is dedicated to finding better treatment for bleeding and clotting disorders, and preventing the complications that arise with these disorders through education, advocacy and research. One of the 109 national member organizations of the World Federation of Hemophilia, NHF is a global leader in coordinating and funding research for a cure.
Hemophilia organizations around the world
National hemophilia organizations are key partners of the WFH. There are currently 109 national hemophilia organizations affiliated with the WFH. For a complete listing of countries that are involved in our global movement, click here.
Corporate partners
We are immensely grateful for the generosity of our corporate donors. Without their donation of treatment products, WFH USA would not be able to save thousands of lives each year in the developing world.
Bayer
Baxter
CSL Behring
Grifols
Pfizer
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