Who we are

WFH USA is the United States’ friendraising and fundraising arm of the World Federation of Hemophilia, affording American citizens, foundations and corporations the opportunity to help ensure treatment for all people with bleeding disorders, no matter where they live.

Founded in 1963, the World Federation of Hemophilia (WFH) is a unique network of people with bleeding disorders in 109 countries, their families, healthcare professionals and interested individuals and organizations. Together, we develop, test and promote healthcare programs that enable local patient populations to take care of themselves.

The WFH conducts training and capacity building at all levels; works with governments to improve healthcare delivery mechanisms and infrastructure; and fosters regional and international discourse on blood product safety. We tap global experiences and resources to develop sustainable solutions for healthcare issues.

Our international programs and activities include education for parents on hemophilia care; twinning of medical centers and hemophilia organizations in the developing world with counterparts in developed countries; news and information and dissemination; and training for doctors, nurses, and other healthcare professionals. We are proud to be a hub for a global community focused on ensuring treatment for all people with bleeding disorders.

Over 75% of people with hemophilia live in the developing world.
One in three people treated has hepatitis C.
One in 10 has HIV.
Many die before adulthood.

Our mission:
Treatment for All

WFH USA plays a vital role in this global mission by giving U.S. citizens, foundations and corporations the opportunity to support the work of the World Federation of Hemophilia and receive tax credits for their contributions. To find out how you can make a difference, visit Get involved

WFH USA Board of Directors

Trish Dominic
CEO, Hemophilia of Georgia

Sally Owens, R.N.
Health Scientist, Division of Hereditary Blood Disorders
Director, Centers for Disease Control and Prevention

Mark W. Skinner, J.D.
Attorney

Craig M. Kessler, MD
Professor of Medicine and Pathology, Georgetown University Medical Center

Claudia Black
CEO/Executive Director, World Federation of Hemophilia

Non-profit partners

Hemophilia of Georgia
Thanks to the staff and volunteers of Hemophilia of Georgia, blood-clotting treatment products are shipped to medical centers in more than 50 developing countries each year. Beyond providing WFH USA with invaluable assistance in international shipping, Hemophilia of Georgia also makes an outstanding leadership contribution. We are grateful for the advice and leadership of Trish Dominic, Executive Director, Hemophilia of Georgia, who serves on the WFH USA Board of Directors.

National Hemophilia Foundation
The National Hemophilia Foundation (NHF) serves people with hemophilia and other bleeding disorders throughout the United States. NHF has chapters across the country and is dedicated to finding better treatment for bleeding and clotting disorders, and preventing the complications that arise with these disorders through education, advocacy and research. One of the 109 national member organizations of the World Federation of Hemophilia, NHF is a global leader in coordinating and funding research for a cure.

Hemophilia organizations around the world
National hemophilia organizations are key partners of the WFH. There are currently 109 national hemophilia organizations affiliated with the WFH. For a complete listing of countries that are involved in our global movement, click here.

Corporate partners

We are immensely grateful for the generosity of our corporate donors. Without their donation of treatment products, WFH USA would not be able to save thousands of lives each year in the developing world.
Bayer
Baxter
Grifols
Wyeth
CSL Behring